Resources
American Cancer Society
800-227-2345
www.cancer.org
CancerCare
800-813-4673
www.cancercare.org
National Cancer Institute's Cancer Information Service
800-422-6237
www.cancer.gov
Brain TumorsBack to Top
InstantInfo PDF - Brain Cancer
Brain Tumor Society
800-770-8287
(617)924-9997
www.tbts.org
Distributes information about brain tumors, and provides support to patients and their families.
National Brain Tumor Foundation (NBTF)
800-934-2873
(415)834-9970
www.braintumor.org
Provides information, counseling, and patient support services to brain tumor patients and their families. Also provides a newsletter, a patient-to-patient telephone support line, a free resource guide, a list of support groups, and training for caregivers.
Breast CancerBack to Top
InstantInfo PDF - Breast Cancer
Breast Cancer Resource Committee (BCRC)
www.bcresource.org
Caters specifically to the African-American population, providing early detection programs, treatment education, support groups, peer counseling and newsletters to prevent and reduce the incidence of breast cancer among African-American women.
Living Beyond Breast Cancer
888-753-5222
(610)645-4567
www.lbbc.org
Provides interactive conferences, teleconferences, a toll-free information and support line, free newsletters and publications, low-cost informational recordings and a networking program for women with breast cancer.
National Breast and Cervical Cancer Early Detection Program (NBCCEDP)
800-232-4636
(770)488-4760 (fax)
www.cdc.gov/cancer/nbccedp
Provides free or low-cast access to breast and cervical cancer screening services for underserved women.
National Lymphedema Network (NLN)
800-541-3259
(510) 208-3200
www.lymphnet.org
Provides education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema.
SHARE: Self Help for Women with Breast or Ovarian Cancer
(866) 891-2392
(212) 719-0364
www.sharecancersupport.org
Offers survivor-led support to women with breast or ovarian cancer, their families, and friends. Services include hotlines, survivor-led support groups, wellness programs, educational forums and advocacy activities.
Witness Project
800-275-1193
(501) 661-9603
www.acrc.uams.edu/patients/witness_project/default.asp
Community-based breast and cervical cancer education and outreach program to increase awareness, knowledge, access to screenings, ad early detection in the uninsured and underserved African-American population.
Colorectal and Gastrointestinal CancersBack to Top
InstantInfo PDF - Stomach Cancer
InstantInfo PDF - Colon Cancer
American Liver Foundation
(212) 668-1000
www.liverfoundation.org
Provides research, education and advocacy for those affected by hepatitis and other liver-related diseases.
Colon Cancer Alliance (CCA)
(877) 422-2030
(212) 627-7451
www.ccalliance.org
Organization of colon and rectal cancer survivors, caregivers, people with a genetic predisposition to the disease, and other individuals touched by colorectal cancer. Services include information, a quarterly newsletter, support program and advocacy.
Colorectal Cancer Network (CCNetwork)
(301) 879-1500
www.colorectal-cancer.net
Offers support for the family and friends of colorectal cancer patients through educational materials and information, as well as group and peer-to-peer counseling.
Life Raft Group
(973) 837-9092
www.liferaftgroup.org
Provides support through information, education and research to patients with GIST (gastrointestinal stromal tumor).
Lustgarten Foundation for Pancreatic Cancer Research
(866) 789-1000
(516) 803-2304
www.lustgartenfoundation.org
The foundation's services include providing information about pancreatic disease and support groups to patients and their families.
Gynecological CancersBack to Top
InstantInfo PDF - Cervical Cancer
InstantInfo PDF - Ovarian Cancer
InstantInfo PDF - Uterine Cancer
Conversations!
(806)355-2565
www.ovarian-news.org
Organization for the support of those fighting ovarian cancer and related illness. Provides tips for coping with side effects of ovarian cancer and its treatment. Provides matches for women seeking to contact other women with ovarian cancer.
Eyes on the Prize
www.eyesontheprize.org
Provides information and emotional support from the survivor's perspective to women with gynecological cancers, their families and friends, and health care providers.
Gilda Radner Familial Ovarian Cancer Registry
800-682-7426
(716)845-2300
www.ovariancancer.com
A project collecting data on the link between heredity and ovarian cancer. The organization also offers general counseling, support groups, and assistance with genetic screening.
Women's Cancer Network
www.wcn.org
Interactive website dedicated to informing women about gynecological cancer risk factors, diagnosis, treatment, and clinical trials.
Other Types of CancerBack to Top
EyeCare Foundation
(212)832-7297
www.eyecarefoundation.org
Resource for patients diagnosed with ocular tumors, macular degeneration and related ophthalmic conditions. Services include providing treatment information, support groups for patients and their families, and funding and directing research to find cures.
Support for People with Oral and Head and Neck Cancer (SPOHNC)
P.O. Box 53
Locust Valley, NY 11560
800-377-0928
(516)759-5333
(516)671-8794 (fax)
www.spohnc.org
Provides current information for oral and head and neck cancer patients who are trying to gain a better understanding of their illness. Services include one-to-one support, patient information packets, awareness, ribbons and pins, a cookbook and newsletter.
Yul Brynner Head and Neck Cancer Foundation
(843)792-6624
www.yulbrynnerfoundation.org
Provides support for head and neck cancer patients; educates children and adults about cancer, treatment and prevention; and supports ongoing research in head and neck oncology.
Hematological and Blood CancerBack to Top
International Myeloma Foundation (IMF)
12650 Riverside Drive, Suite 206
North Hollywood, CA 91607
(800) 452-CURE (800-452-2873)
(818) 487-7455
(8180 487-7454 (fax)
www.myeloma.org
theimf@myeloma.org
Provides information and services for the treatment and management of multiple myeloma. Services include a toll-free hotline, patient and family seminars, clinical conferences, a bi-monthly newsletter, and research funding.
Leukemia & Lymphoma Society
1311 Mamaroneck Ave.
White Plains, NY 10605
(800) 955-4572
(914)949-5213
(914) 949-6691 (fax)
www.lls.org
info@lls.org
Dedicated to funding blood cancer research, education and patient services. Offers a variety of services and programs in support of the mission to cure leukemia, lymphoma, Hodgkin's disease and myeloma, and to improve the quality of life for patients and their families.
Max Foundation
110 W. Dayton, Suite 205
Edmonds, WA 98020
(888) 462-9368
(425) 778-8660
(425) 778-8760 (fax)
www.themaxfoundation.org
info@themaxfoundation.org
Dedicated to improving the quality of life and survival rates of patients with blood-related cancers worldwide. Services include referrals to clinical trials, support groups, and local assistance and advocacy for people with limited access to resources and treatment options. Provides one-on-one care, emotional support and information to patients, their families and caregivers.
Multiple Myeloma Research Foundation (MMRF)
51 Locust Ave., Suite 201
New Canaan, CT 06840
(203) 972-1250
www.multiplemyeloma.org
info@themmrf.org
A private funder of myeloma-specific research. The website also offers comprehensive and in-depthinformation on myeloma, its treatments, clinical trials, advocacy, medical programs and research grants.
Myelodysplastic Syndromes (MDS) Foundation
P.O. Box 353
Crosswicks, NJ 08515
(800) MDS-0839 (800-637-0839)
(609) 298-6746
(609) 298-5090 (fax)
www.mds-foundation.org
patientliaison@mds-foundation.org
Devoted to the prevention, treatment and study of myelodysplastic syndromes. International information network provides patients with referrals to Centers of Excellence, contact names for available programs, sharing of new research and treatment options, and extension of educational support to both physicians and patients.
National Marrow Donor Program (NMDP)
3001 Broadway St., N.E., Suite 500
Minneapolis, MN 55413
(800) MARROW-2 (800-627-7692)
(888) 999-6743
(612) 627-5800
www.marrow.org
patientinfo@nmdp.org
Helps people who need life-saving marrow or blood cell transplants. Connects patients, doctors, donors and researchers to resources they need. Holds the largest registry of volunteer donors and cord blood units in the world; supports patients and their doctors throughout the process; and matches patients with the best donor or cord blood unit.
Lung Cancer Alliance
888 16th St., N.W., Suite 800
Washington, DC 20006
(800) 298-2436
(202) 463-2080
www.lungcanceralliance.org
Advocates on behalf of lung cancer patients, survivors, families, caregivers and those at risk. Programs include the Lung Cancer Hotline, A toll-free information and referral service for people with lung cancer and their caregivers, a peer-to-peer support network, and newsletter.
Lung Cancer Online Foundation
www.lungcanceronline.org
Mission is to improve the quality of care and quality of life for people with lung cancer. Funds lung cancer research and provides information to patients and families via its website, which has a directory of lung cancer resources for medical care, support services, treatment information and quality-of-life concerns.
Pediatric CancersBack to Top
InstantInfo PDF - Childhood Cancer
Children's Brain Tumor Foundation (CBTF)
274 Madison Ave., Suite 1004
New York, NY 10016
(866) 228-HOPE (866-228-4673)
(212) 448-9494
(212) 448-1022 (fax)
www.cbtf.org
Offers basic support services, and all services are free. Publications for parents and children are available in English and Spanish. Full-time pediatric oncology social worker available to assist families. Other offerings include newsletters, annual teleconferences, a parent-to-parent network, and children's programs.
CureSearch National Childhood Cancer Foundation
4600 East West Highway
Suite 600
Bethesda, MD 20814
(800) 458-6223
(240) 235-2246
(301) 718-0047 (fax)
www.curesearch.org
Funds research and treatment of children with cancer. Also provides advocacy, public education, referrals to treatment centers and clinical trial information.
National Children's Cancer Society
1015 Locust, Suite 600
St. Louis, Mo 63101
(314) 241-1600
(314) 241-1996 (fax)
www.nationalchildrenscancersociety.org
Mission is to improve the quality of life for children with cancer by promoting children's health through financial and in-kind assistance, advocacy, support services and education.
Starlight Starbright Children's Foundation
1850 Sawtelle Blvd., Suite 450
Los Angeles, CA 90025
(800) 315-2580
(310) 479-1212
(310) 479-1235 (fax)
Provides programs that address the social, emotional and medical aspects for children and teenagers living with a serious illness. Programs empower children and families to take charge of their illness, play a more active role in their treatment, and better cope with the challenges that accompany prolonged illness.
Prostate and Male Reproductive CancersBack to Top
InstantInfo PDF - Prostate Cancer
InstantInfo PDF - Testicular Cancer
American Urological Association Foundation (AUA)
1000 Corporate Blvd., suite 410
Lithicum, MD 21090
(800) 828-7866
(410) 689-3990
www.afud.org
Offers the "Prostate Cancer Resource Guide" which includes information on diagnosis and treatment, other cancer resources, and questions to ask your doctor.
National Prostate Cancer Coalition (NPCC)
1154 15th St., N.W.
Washington, DC 20005
(888) 245-9455
(202) 463-9445
(202) 463-9456 (fax)
www.fightprostatecancer.org
Aims to provide in-depth education about prostate cancer, offers free and confidential screenings, and actively works with government officials to increase funding for prostate cancer research.
Us TOO International Prostate Cancer Education & Support Network
5003 Fairview Ave.
Downers Grove, IL 60515
(800) 80-Us TOO (800-808-7866)
(630) 795-1002
(630) 795-1602 (fax)
www.ustoo.org
Through publications and chapter support groups throughtout the United States, helps men and their families learn about prostate cancer so that they can make better decisions about treatment options and cope with emotional and quality-of-life issues.
SarcomasBack to Top
Sarcoma Alliance
775 E. Blithedale, #334
Mill Valley, CA 94941
(415) 381-7236
(415) 381-7235 (fax)
www.sarcomaalliance.org
Strives to extend and improve the lives of sarcoma patients through accurate diagnosis, improved access to care, education and support.
Skin CancersBack to Top
Let's Face It
P.O. Box 29972
Bellingham, WA 98228
(360) 676-7325
www.faceit.org
Nonprofit information and support network that provides helpful resources to people with facial disfigurement and all who care for them.
Melanoma Research Foundation (MRF)
24 Old Georgetown Road
Princeton, NJ 08540
(800) MRF-1290 (800-673-1290)
(732) 821-5955 (fax)
www.melanoma.org
Supports medical research for funding of effective treatments and cure for melanoma. Educates patients and physicians about the prevention, diagnosis and treatment of the cancer, and acts as an advocate for the melanoma community.
More InstantInfoBack to Top
InstantInfo PDF - Kidney
InstantInfo PDF - Pancreatic Cancer
InstantInfo PDF - Myeloma
InstantInfo PDF - Bone Cancer
InstantInfo PDF - Bone Marrow Transplant
InstantInfo PDF - Chemotherapy
InstantInfo PDF - Communicating with your Doctor
InstantInfo PDF - Leukemia
InstantInfo PDF - Liver Cancer
InstantInfo PDF - Lung Cancer
InstantInfo PDF - Lymphoma
InstantInfo PDF - MGUS
InstantInfo PDF - Nasopharyngeal Cancer
InstantInfo PDF - Non-Hodgkins Lymphoma
InstantInfo PDF - Nutrition for the Cancer Survivor
InstantInfo PDF - Radiation Therapy